The simple task of putting on a band-aid led to a real epiphany for me. Our tuxedo cat, Slick, hates, as in really hates the cat carrier and managed to give me a good scratch on my left wrist on his way in for his trip to the vet to get said claws trimmed. But what was interesting was the follow-up. I got out the band-aids and asked for help from hubby in getting it on. Bless his heart...he just couldn't figure it out and finally I managed to pull it open and get it on the wound.
Later it hit me...that I am alone. We have had each other's backs for over 50 years and now he can no longer help. If I fell or became ill, there would be little that he could do to help. I have no real back up and it is so sad as I know it is his loss as well. I can still be there for him but he can't do much for me. Most of our neighbors work during the day and seldom is there anyone home.
So I better stay damn healthy and upright. It seemed like such a simple thing but it brought home what expectations I have to let go of.
Thank God/Goddess/ Fluffy, whatever for support groups. I brought this loss up in group and realized that there were several women in the support group who live in my neighborhood and are in similar circumstances. I made the suggestion that maybe we could form a seniors group in El Lago and immediately group members started naming seniors on there blocks that live alone. The idea that maybe we could put some system in place where seniors could be checked on if they wanted.
The group facilitator volunteered to go to City Hall where I suggested she talk to the City Secretary.
She called yesterday that she talked with the Secretary who asked her, "Do you believe in Divine Intervention?" Turns out the city had been talking about this for some time and jumped on the idea. The city will send out flyers, put it in the local newsletter and follow up with phone calls. The first meeting is Nov. 21 form 10 to 1 and the city will provide snacks, lunch and entertainment. Holy moly! Fabulous!
The potential is exciting. I read an article about a small community in NY with an aging population who bonded together with an investment of around $200 to keep a resource group on retainer for plumbing, carpentry needs or rides or meals, etc which gave them a discount rate.
I can see potlucks, trips to interesting sites around Houston using the Harris Co buses for seniors.
So my loss could turn into a gain for us and the whole community. We have a lot of seniors who are still living in the homes they built in the early days of the space program so we have a lot of gray hairs around.
Thursday, October 31, 2013
Tuesday, October 22, 2013
Thank God for humor
There are some funny things that happen around here with the Alz. The other day while making our bed, I noticed something near my pillow. I picked it up to find that it was a dollar bill that had been folded and folded into a tiny square. I showed it to my husband and said, "Hey, I'm worth more than that!". He replied, "Yeah, ten dollars."
I have no idea where the bill came from but there it was.
I have no idea where the bill came from but there it was.
Monday, October 21, 2013
On the road with Alzheimer's
Because we were going to the party I checked his suitcase which he had packed to make sure he had clothes for the planned weekend events. Oh geez...two pairs of pajamas and two dirty shirts (favorites). Okay, I started over in the suitcase and had it all packed the night before. Clothes for the party were on a hanger along with the clothes for him to wear on the drive up. The departure morning arrives, I load my things in the car and wake him up and point out his clothes. He heads for the shower and I read the paper and wait and wait and wait. On checking, he is back fussing over the suitcase again and taking stuff out, then piling more stuff in. I fold the wadded up shirts back in the suitcase and redirect him back to get his shoes and socks on. Then he is on to fussing over his piles of papers on the table and making sure he has a highlighter for the newspaper he is bringing.
At last we are on the road an hour later than I had hoped but oh well. Hubby is grumpy and obviously upset. I ask why and he said he wanted to pack his suitcase and was confused about it. I acknowledged his confusion and mentioned the dirty shirts.
We stop for lunch in Lufkin and call Sandy to tell her to go on to her meeting in the afternoon. We stop at Love Point, a scenic overlook and hubby has lightened up and seems to be enjoying himself.
In Tyler at last Sandy left the door open for us and we had just arrived and unloaded the car when she got home. She has a young dog who immediately took to Ken and made them both happy. Sandy fixed a lovely dinner, her son and family joined us and we visited for a while, examined her magnificent garden, and went to bed at a decent hour. The next day after a late breakfast we headed to the art community of Edom. Hubby seemed happy to go but complained of being tired. We reconnected with some artists I knew from way back in my pottery days and had a great lunch which he ate all. We drove back to Tyler, full and happy. Then we toured a magnificent old home near downtown that has been restored and maintained. Hubby enjoyed the video about the history of the house and thanked Sandy for taking us.
Then we went to a local coffee house for a cup of java. And here began the sundowning. Hubby brightened up and said he remembered that Sandy's husband had brought him to tour the house and then to the same coffee house. Well, that never happened. Bob was not able to drive and never saw the house. But it does make me wonder if there was an occasion somewhere in some town where hubby had had a similar experience.
The next morning we let hubby sleep as we were planning to attend the party later. I helped Sandy with some planning of some stuff she needs to take care of and then dressed for the party. I woke
hubby to get showered and dressed. I went back to check on him and there was water all over the floor of the bedroom (?) and he was fussing over his suitcase and had forgotten about the clothes laid out on the bed for him. He asked over and over again where we were going. By then it was 11:30 so Sandy suggested we go for brunch before heading for the afternoon event. Hubby gets terribly confused by menus...bless his heart, he can decide on something but forgets it by the time the waitress asks for his order. Brunch went well and off we went...again he asks where we are going.
Our friends were renewing their wedding vows in a small church. As we sat there, hubby asked over and over again where we were and why were we there. BUT he did recognize his friend and couldn't wait to greet him after the service. He seemed a bit confused when the party moved to the couple's home and began to frown and declined any food or drink. Sandy was so understanding and realizing he had reached his limit, cut the afternoon short to head home.
The next morning we were to leave and the whole scene was repeated around the suitcase, meds, and so. On the way home, he commented over and over about what newspapers would be in the front yard waiting...he couldn't wait to read them.
I know that any change in routine is a challenge for an Alzheimer's patient and he certainly was full of anxiety. All in all he did well. I was the frustrated one. Just trying to get him out the door for most anything is a challenge by the time he compulsively checks and rechecks his stacks of papers on the window sill. And answering the same questions over and over and over again in a 15 minute time period. I think there will be a limited number of trips in our future as it is difficult for us both. We've been home for a day now and he has been angry all day. He is angry because he can't remember where he put some work he was doing for a book. I think he thinks I moved it but knows better than to say that. This disease has to be so, so frustrating for the patient...just imagine if you constantly can't remember where you put anything or can't find the right word to say what you want. Books lose interest because if you can't read it straight through, you won't remember what you read. And so it goes on ever turn during the day. Hopefully one day a successful treatment or prevention will be found.
Labels:
Alzheimer's Disease,
Caregiving
Friday, October 11, 2013
Surprise!
Great! Then it was my turn to pick out any that I might want to hang on to. Whoops! As I checked case after case, they were empty and I tossed them on the floor. But where did the CDs go that belonged in the cases? I found a few in the car case but where were the others? After a diligent search, I found them all stacked in a drawer of another cabinet. It seems when hubby played a CD, he never put it back in its case. This must have been going on for years, not that we haven't all done this occasionally but we are talking over a hundred...more evidence that the disease may have been present long before diagnosis.
Guess what I'll be doing today!
Labels:
Aging,
Alzheimer's Disease,
Caregiving
Thursday, October 10, 2013
Another collaged portrait
I'm learning it is very important for the care partner of an Alzheimer's patient to get out into the real world on a regular basis and get together with friends. Last night The Arts Alliance Center of Clear Lake provided that for me with another fundraiser fun time with some friends from my book club. An evening of Vino and Van Gogh. TAACCL provides the canvas and paint and collage material and snacks and wine and wonderful fun artist folk to help. It was great to just sit back and play with paint...this is the 2nd portrait I've done using images from a napkin for the eyes. This one has sea shell eyes.and tissue paper hair. I haven't named her yet.
More good news from last night...
#1. I met a friend/former colleague whom I hadn't seen in years and we have a lunch date set up (another recommendation for care partners) .
#2. I now know where I can donate all the paper scraps and collage material (think a collection of all kinds of paper stuff for 20 years). The teacher of these mini-workshops has been donating her stash and can use all this crap I've been saving. Woohooo!
#3. I am sure that wherever we go, I will have to have a place however small to make art....whether it is art journaling or canvases, I must create to keep my sanity and health.
#4. Hubby with my help managed to contact a friend who picked him up last night and took him to church for dinner and discussion and he had a wonderful time and even remembers some of what went on. He is a very happy camper today...me, too.
Today's project: get off the computer and pack up CDs for the church garage sale.https://www.facebook.com/kay.cox
More good news from last night...
#1. I met a friend/former colleague whom I hadn't seen in years and we have a lunch date set up (another recommendation for care partners) .
#2. I now know where I can donate all the paper scraps and collage material (think a collection of all kinds of paper stuff for 20 years). The teacher of these mini-workshops has been donating her stash and can use all this crap I've been saving. Woohooo!
#3. I am sure that wherever we go, I will have to have a place however small to make art....whether it is art journaling or canvases, I must create to keep my sanity and health.
#4. Hubby with my help managed to contact a friend who picked him up last night and took him to church for dinner and discussion and he had a wonderful time and even remembers some of what went on. He is a very happy camper today...me, too.
Today's project: get off the computer and pack up CDs for the church garage sale.https://www.facebook.com/kay.cox
Labels:
Alzheimer's Disease,
Caregiving,
Painting
Wednesday, October 09, 2013
Lonely but never alone...the story of an Alzheimer's caretaker
I'm sitting at the breakfast table with my first cup of coffee. It's early..around 5:30 am..early for this slug-a-bed. The house is quiet except for a few furry hungry feline faces wandering around my ankles. And it is cool enough that I'm wearing a sweater. I remember my dearest Aunt Katrina wrapped in sweaters as she grew old. And now it's me vacillating between burning up and feeling chilly.
It's daunting and overwhelming, this task of facing the reality of where I am in life's seasons. No one tells you early in life to be prepared for losses. You know at some level that some near and dear to you will fade away, that your parents will transition but the gradual losses can be just as big. My best friend, spouse, lover, partner of 55 years is no longer the companion I'd grown accustomed to as his memory and reasoning is more and more confused. There is so much loss with Alzheimer's.
We have both lost some of our independence. The big one for him is his independent mobility when his car keys were taken away. My loss is in time...my time is spent fixing his meals, driving him places, finding his missing date book, explaining once again how to use the phone, the remote to the TV. My independence has shrunk as he wants to go with me on errands, to shop, the postoffice. At times I feel like I'm drowning in "togetherness". I'm lonely but never alone.
And there are household tasks which each of us have had to give up...cleaning chores like mopping, scrubbing a tub, changing a light bulb in the ceiling. I love the ad on TV as the husband watches his elderly mate climbing a ladder to dust a high shelf.
The thing I miss the most are the long conversations about books, about relationships, government, politics, about all kinds of things. But a bigger loss is in the works. We need to sell our house. It is too big for us to care for anymore and I must plan ahead for what is to come with hubby's illness. Twenty years of crap to get rid of. Daunting and overwhelming and very sad. I will be giving up my studio full of art supplies and the potential of canvases and collages that might have been. The bedrooms and closets and kitchen are easy but letting go of special inks, brushes, paints, print-making tools, art books, exotic papers, glues, rubber stamps, ribbons, tapes, pencils, pastels and on and on is just so hard. They all have been such a big part of my life for so long, my best friend and lover. Of course, I will hang on to a small amount of paint and paper and glue but the rest has to go.
What to do with all those journals I created for the last 40 years...the stories of my life that I was going to use as poetry prompts?What to do with all the art work I've created? Canvases and drawings in closets and flat files? Sometimes I think it would be much easier to just walk away with a few clothes in a suitcase. Fly to San Miguel de Allende, Albuquerque, Asheville and never look back? Talk about a clean start. But back to reality, it is all about selling this house ASAP and I'm gonna need some help in finding the joy in this adventure
.
It's daunting and overwhelming, this task of facing the reality of where I am in life's seasons. No one tells you early in life to be prepared for losses. You know at some level that some near and dear to you will fade away, that your parents will transition but the gradual losses can be just as big. My best friend, spouse, lover, partner of 55 years is no longer the companion I'd grown accustomed to as his memory and reasoning is more and more confused. There is so much loss with Alzheimer's.
We have both lost some of our independence. The big one for him is his independent mobility when his car keys were taken away. My loss is in time...my time is spent fixing his meals, driving him places, finding his missing date book, explaining once again how to use the phone, the remote to the TV. My independence has shrunk as he wants to go with me on errands, to shop, the postoffice. At times I feel like I'm drowning in "togetherness". I'm lonely but never alone.
And there are household tasks which each of us have had to give up...cleaning chores like mopping, scrubbing a tub, changing a light bulb in the ceiling. I love the ad on TV as the husband watches his elderly mate climbing a ladder to dust a high shelf.
The thing I miss the most are the long conversations about books, about relationships, government, politics, about all kinds of things. But a bigger loss is in the works. We need to sell our house. It is too big for us to care for anymore and I must plan ahead for what is to come with hubby's illness. Twenty years of crap to get rid of. Daunting and overwhelming and very sad. I will be giving up my studio full of art supplies and the potential of canvases and collages that might have been. The bedrooms and closets and kitchen are easy but letting go of special inks, brushes, paints, print-making tools, art books, exotic papers, glues, rubber stamps, ribbons, tapes, pencils, pastels and on and on is just so hard. They all have been such a big part of my life for so long, my best friend and lover. Of course, I will hang on to a small amount of paint and paper and glue but the rest has to go.
What to do with all those journals I created for the last 40 years...the stories of my life that I was going to use as poetry prompts?What to do with all the art work I've created? Canvases and drawings in closets and flat files? Sometimes I think it would be much easier to just walk away with a few clothes in a suitcase. Fly to San Miguel de Allende, Albuquerque, Asheville and never look back? Talk about a clean start. But back to reality, it is all about selling this house ASAP and I'm gonna need some help in finding the joy in this adventure
.
Labels:
Aging,
Alzheimer's Disease,
Caregiving
Sunday, October 06, 2013
Let the battle begin...
Woo hoo! Let the battle begin. Hundreds of pro-lifers lined Nasa Parkway with signs this afternoon. A great indication that Sen. Wendy Davis has them scared shitless. Fabulous! I can't wait to get a Wendy Davis sign in my front lawn and on my car. People, we have just come too far to let this battle continue. We cannot let a small few take us back to the dark ages. Women should be given a choice! That's it! Plain and simple! No, I'm not crazy about women having abortions but I'm also not crazy about women getting pregnant when they cannot or should not support the life once born. Women will continue to get abortions somehow, someway possibly in dangerous situations and we, the taxpayers, will end up paying for their trips to emergency rooms or for their subsequent health issues. Or we will continue to care for those children they can't support through welfare or other subsidies. This is crazy! GIVE WOMEN THE CHOICE THEY DESERVE! This ain't an issue to be determined by any religious belief. Believe whatever you want but don't impose it on others.
SUPPORT WENDY DAVIS FOR GOVERNOR!
It is our only reasonable choice!
Labels:
Abortion,
Pro Choice,
Sen. Wendy Davis
Thursday, September 26, 2013
Support groups and paint?
Support groups are great...thank goodness I have one...just wish it met more often than once a month. It is so affirming to know I'm not alone in this care taking. Hubby has been complaining of being really tired and not wanting to do anything, go any where. He just wanted to sleep all the time. Since his brother had complained of being tired which turned into a severe heart problem, I was concerned and still am. But at support group I learned this is typical of the disease. I will continue to keep a lookout for other symptoms. But today he seems fine, got up early, has been working on his computer and has a healthy appetite. He has even been cooperative about cleaning the bathroom which has been a big help as it is hard for me to get down on my knees to do parts of the floor.
Daughter and I are painting the small bedroom...it is a what I hope is a lovely green but until we get the bright pink covered up, it is really hard to tell. Yikes. I'm in the mood to paint all the bedrooms and the front bathroom all different colors...to heck with the all neutral cream color all over the house. Bring on the color. YES!
Daughter and I are painting the small bedroom...it is a what I hope is a lovely green but until we get the bright pink covered up, it is really hard to tell. Yikes. I'm in the mood to paint all the bedrooms and the front bathroom all different colors...to heck with the all neutral cream color all over the house. Bring on the color. YES!
Thursday, September 19, 2013
Alzheimer's and the car keys
| |||
This entry will surely bore many of you but I am blogging all this to document the progress of the disease for both of us in hopes that someday I may put it all together to help someone else who is struggling as a patient or a caregiver.Wow, it has been an interesting. Hubby got very agitated and upset last night. Accused me of "shang-hai-ing" his car keys. He is furious once again about it and questioning who said he can't drive, it doesn't say anything on his license that he can't drive and who told me that he couldn't. He still isn't speaking this morning which is interesting that he remembers to be mad. Telling him that three docs have said he shouldn't drive and that if anything happened while he was driving, regardless of whose fault it would be, the insurance wouldn't pay because of all the medications he is on for Alz. He is blaming it all on me, of course. So I'm just trying to figure out what triggered all this. To begin with, Taylor is staying with us and she drives what was essentially his van sometimes. He has the idea that she is going to take it and use it for a down payment on a car....(not a bad idea in my book but she has never mentioned it...she is embarassed to drive it to school with all its dents, etc.). He must believe as long as the van shows up in our driveway, he will still have access to it. Secondly, the whole scene yesterday at JSC when I asked about driving him in and picking him up as he no longer drives, must have thrown a kink into his works about not being able to drive onto the JSC campus by himself. Thirdly, we started a class at our church last night that meets on Wednesday nights. He seemed to enjoy it but at the end of the class, I asked if he wanted to attend next week. He said "yes" and as I will be unable to attend, I asked a friend in the class who lives in our neighborhood if he would mind picking him up. George agreed, no problem. But again, this being unable to do it himself remains a terrible loss to him. I understand completely and will probably fight it when my keys are taken away. Right now I'm just grateful that one of us can drive. | |||
Wednesday, September 18, 2013
Back into bureaucracy
Interesting morning. I can't find the cinnamon rolls that I bought yesterday...they were on the counter. Whoa, here they are in the freezer. No problem, beats the recycle bin.
The Alz guy, better known as hubby, lost his NASA Alumnae badge again. No clue as to where it might have gone but I have looked everywhere. For all I know he may have dropped it on the JSC campus somewhere. Of course he has been frantic as the connections to the space program are so important to him, not just for the friendships he has made over the 45+ years on the space program but thoughts around space seem to be the deepest ruts in his brain and holding on better than anything else like where his badge went or where to put things or where the microwave is in the kitchen.
So today's mission was to go to JSC and get another badge. I have, change that to "had", a spouse's badge that was given to me years ago when he retired back in one of my "red hair" days but it was losing its laminate. So into the badge office we go at JSC...Ken hands over his drivers' license and I hand over my badge to get it replaced (big mistake!). Ken gets a new badge no problem but the nice lady says I'm not supposed to have one...that mine was supposed to be turned in when he retired, that it wasn't valid anymore. I informed her that I had been getting on site for years with it, that hubby can no longer drive so it is up to me to deliver him when he has a meeting on site and how am I supposed to come back and get him if I don't have a badge? Answer from the bureaucracy: Have the employed person that he is visiting order a visitor's badge for me. And they wouldn't give my badge back. So now hopefully I can drive him in but I have to stop at the badge center and get a badge to just drive through the gate and pick him up standing in front of a building. Things have certainly tightened up since 9/11 which is good but this is the first time after 40 + years I've ever had a problem. Hubby's comment: "Welcome to government bureaucracy." My response: "Just don't lose your damn badge again." Smile, grin, sigh.
The Alz guy, better known as hubby, lost his NASA Alumnae badge again. No clue as to where it might have gone but I have looked everywhere. For all I know he may have dropped it on the JSC campus somewhere. Of course he has been frantic as the connections to the space program are so important to him, not just for the friendships he has made over the 45+ years on the space program but thoughts around space seem to be the deepest ruts in his brain and holding on better than anything else like where his badge went or where to put things or where the microwave is in the kitchen.
So today's mission was to go to JSC and get another badge. I have, change that to "had", a spouse's badge that was given to me years ago when he retired back in one of my "red hair" days but it was losing its laminate. So into the badge office we go at JSC...Ken hands over his drivers' license and I hand over my badge to get it replaced (big mistake!). Ken gets a new badge no problem but the nice lady says I'm not supposed to have one...that mine was supposed to be turned in when he retired, that it wasn't valid anymore. I informed her that I had been getting on site for years with it, that hubby can no longer drive so it is up to me to deliver him when he has a meeting on site and how am I supposed to come back and get him if I don't have a badge? Answer from the bureaucracy: Have the employed person that he is visiting order a visitor's badge for me. And they wouldn't give my badge back. So now hopefully I can drive him in but I have to stop at the badge center and get a badge to just drive through the gate and pick him up standing in front of a building. Things have certainly tightened up since 9/11 which is good but this is the first time after 40 + years I've ever had a problem. Hubby's comment: "Welcome to government bureaucracy." My response: "Just don't lose your damn badge again." Smile, grin, sigh.
Tuesday, September 17, 2013
Show me the money!
I spent the morning with millions and millions of dollars but this is all I came home with...a capsule of shredded money so don't get your hopes up of borrowing any from me or for that matter, my morning venue. I went with a group to tour the Federal Reserve Bank in downtown Houston, an incredibly beautiful and totally functional building. Amazing architecture and even more beautiful furnishings and I'm not talking about the $$$ in its 5 story vault. So tastefully done with an impressive collection of Texas artists. It was designed by Michael Graves...yep, the same guy who creates household items for Target. Walls and furniture in beautiful oak from around Austin and hill country limestone on the floor. The beautiful board room with a wall of windows onto Allen Parkway, inlaid huge conference table with lovely blue leather chairs embossed with the seal of the Federal Reserve. 90 million dollar facility to hold the millions but a beautiful asset to Houston. So now every plain white 18 wheeler I pass I have to wonder if it is carrying an enormous load of money to very secure gates of the Federal Reserve.
Monday, September 16, 2013
Vino and Van Gogh
This is a collage I created at a fundraiser called Vino and Van Gogh for The Arts Alliance Clear Lake Center at Opus restaurant in Clear Lake Shores. It was a fun evening trying to create something on canvas with limited supplies and a very limited palette. The 8 x 10 canvases had all been painted with a background and there were lots to choose from. I had imagined a real getting messy workshop with lots of paint and stuff flying and wore an old T-shirt and jeans...my usual paint attire. Ha! It was obviously a society event and the attending ladies were decked out to the nines...well, maybe not their "nines" but mine for sure. And obviously many had never created anything like it in their lives. The ladies at my table were very nice but kept quizzing me about what I was doing. I just kept on gluing and tearing and painting but believe me, they had a hard time understanding why I was creating what I was creating. I think Van Gogh would have loved it...I do and I do want to support TAACCL. It has been a real loss to our community when they had to close their facility. We are all hoping that a wonderful venue will be available soon. But in the meantime these mini-workshops are very well organized with a good instructor and I encourage my friends to go and have fund while giving support.
I love this idea for fundraising and several from my book club are going in Nov. to another Vino and Van Gogh at the Sundance Grill. Who knows what the next creation will be.
Sunday, September 15, 2013
They're back!
They are back and it must mean that some cooler weather is on its way. I never get tired of watching these tiny beings darting back and forth to the feeders from tree branches and telephone wires. There are two different kinds this year...the ruby-throated and another metallic green and they seem to get along well together, even sharing feeder time, moving from feeder to feeder and not continuously chasing the other birds away. Our backyard has become a zoo of sorts...in the early morning hours I am stalked by a squirrel sitting in the shiffelera just outside the living room French door waiting for me to hand her a peanut or place an ear of corn in the feeder. She sits staring, watching and waiting. I think she must be nursing a family somewhere.
Sparrows have discovered the other feeder along with the red-bellied woodpecker and doves and black & white pigeons scout the ground for the corn debris left by the squirrels. The other day there was an all white pigeon among them and I fantasized it carried some message. Maybe a message from the Great Mystery telling me to enjoy all this and protect it. www.facebook.com
Saturday, September 14, 2013
A new woman
A haircut and a pedicure...I'm a new woman. Sometimes it takes so little to change a day or week around. A pedicure with dear Jennifer who does an awesome job but whom I can only understand an occasional word or two or three does so much to brighten my week. I can only afford her cheerful healing touch once a month which is fine as it might lose its specialness if I went more often. Jennifer continues to babble in Vietnamese to the other employees and she must be really funny as they all laugh a lot.
Yesterday she gave a big smile and nod of approval on my color choice..."Much better", she said. "Purple you get in the winter." And so it is that I once again have bright red toes...now if only I could remember the name of the polish.
I'm trying the new chicken enchilada recipe for dinner tonight but so wish the weather would cool down...almost 100 degrees here on the Bay yesterday. No sign of winter here or even fall.
Yesterday she gave a big smile and nod of approval on my color choice..."Much better", she said. "Purple you get in the winter." And so it is that I once again have bright red toes...now if only I could remember the name of the polish.
I'm trying the new chicken enchilada recipe for dinner tonight but so wish the weather would cool down...almost 100 degrees here on the Bay yesterday. No sign of winter here or even fall.
Friday, September 13, 2013
Wow, it has been a long time but I've been busy...with what? Life, you know, how it gets in the way of your plans. My house is a mess and I can't find the broom. Our granddaughter is coming this afternoon to spend a week while her mother is in Iowa getting married which is a great thing but for the next 10 days I will have the granddog, granddaughter, three cats and my husband with Alzheimer's along with trips to League City to feed the other cat who lives there.
Now about the Alz...I've come to realize that he is getting worse in spite of the new medication and it does make life interesting. Today I can't find the broom. The dust pan is in its usual home but the broom is missing. I've looked everywhere and of course, he doesn't remember anything about it. Glasses are sitting in the cupboard where the coffee mugs sit and naturally, coffee mugs are showing up in the cupboard with the glasses. And the "sundowning" has begun....that is where the patient goes more confused and rattled around dinner time. He complains of being tired but I think at some level he is aware that he isn't as sharp as he now wants to walk the dog in the morning instead of the afternoon. I'm all for it as the days get shorter and the chance of his getting lost increases. So far he has been able to find his way in the neighborhood but I insist he carry his cell phone. Now whether he remembers to use when he is lost is another matter.
This brilliant man has always been somewhat compulsive.He probably had Alz long before he was diagnosed but has been smart enough to develop coping skills to cover up what he couldn't remember or figure out. He sits at the breakfast table for hours going over the NY Times and the Wall Street Journal with a yellow high lighter and later goes back and cuts them up with articles he wants to read again. This is a brilliant man who never developed any hobbies...no woodwork, no sport, no stamp collecting, nothing but the space program.
Last week he was compulsively watering everything in the yard...hose on full blast over and over every day. The tomatoes drowned, water was running down the street and God knows what our water bill will be. I try to redirect him but the first thing I know he is out the door and has the water on. He isn't interested in television very much anymore...he used to watch MSNBC programs over and over but not so much anymore.
He is still such a sweet and kind man. The cats adore him, the granddog adores him, little children love him and so do I. It is just so sad to lose one's life partner this way.
Now about the Alz...I've come to realize that he is getting worse in spite of the new medication and it does make life interesting. Today I can't find the broom. The dust pan is in its usual home but the broom is missing. I've looked everywhere and of course, he doesn't remember anything about it. Glasses are sitting in the cupboard where the coffee mugs sit and naturally, coffee mugs are showing up in the cupboard with the glasses. And the "sundowning" has begun....that is where the patient goes more confused and rattled around dinner time. He complains of being tired but I think at some level he is aware that he isn't as sharp as he now wants to walk the dog in the morning instead of the afternoon. I'm all for it as the days get shorter and the chance of his getting lost increases. So far he has been able to find his way in the neighborhood but I insist he carry his cell phone. Now whether he remembers to use when he is lost is another matter.
This brilliant man has always been somewhat compulsive.He probably had Alz long before he was diagnosed but has been smart enough to develop coping skills to cover up what he couldn't remember or figure out. He sits at the breakfast table for hours going over the NY Times and the Wall Street Journal with a yellow high lighter and later goes back and cuts them up with articles he wants to read again. This is a brilliant man who never developed any hobbies...no woodwork, no sport, no stamp collecting, nothing but the space program.
Last week he was compulsively watering everything in the yard...hose on full blast over and over every day. The tomatoes drowned, water was running down the street and God knows what our water bill will be. I try to redirect him but the first thing I know he is out the door and has the water on. He isn't interested in television very much anymore...he used to watch MSNBC programs over and over but not so much anymore.
He is still such a sweet and kind man. The cats adore him, the granddog adores him, little children love him and so do I. It is just so sad to lose one's life partner this way.
Friday, July 12, 2013
Texas War on Women's Choices
I am just so angry, disappointed and upset with the Texas Legislature and Gov. Big Hair Perry I had to write about it:
Bless Sen. Wendy Davis in her pink shoes
Standing up for women’s rights to health care
Should they be registered at the local gun shop
Danger that they are
Knives aimed at their bellies
Slicing through the right of choice
Only five, in Houston, Austin, San Antonio and Dallas
Would remain, none in rural areas or West Texas
Choices in family planning
Choices in how they will live out their lives
Following their desperate attempts
To abort with coat hangers
That you cannot see that we will all pay
For the emergency care of these women without clinics
For protecting Ambulatory Surgery Centers
Physician Hospitals
Texas War on Women’s
Choices
I am lying in the knives
thrown at women
by the Republican LegislatorsBless Sen. Wendy Davis in her pink shoes
Standing up for women’s rights to health care
How is it that hand guns are
allowed in the chamber
Tampons, sanitary napkins are
confiscatedShould they be registered at the local gun shop
Danger that they are
I feel the threat aimed
At the health care of Texas
womenKnives aimed at their bellies
Slicing through the right of choice
Knives aimed to remove
Thirty-seven clinics serving
women across the StateOnly five, in Houston, Austin, San Antonio and Dallas
Would remain, none in rural areas or West Texas
Leaving many women of lower
income
Without access to mammograms,
pap smears, wellness exams Choices in family planning
Choices in how they will live out their lives
You regressives are sending
us back in time
When many women diedFollowing their desperate attempts
To abort with coat hangers
Are your minds so clouded
Holding on to office and to
religious dogmaThat you cannot see that we will all pay
For the emergency care of these women without clinics
Or did Rick Perry’s sister,
Milla Perry Jones,
Buy your votes, promise
reelectionFor protecting Ambulatory Surgery Centers
Physician Hospitals
Stop this insanity!
Vote 2014
Kay Cox
7/2013Friday, August 10, 2012
HOT WATER!
Dear American Home Shield, thank you so very much for your follow up call and generous offer of the gift card for the next service call. Adrian Rodriquez was here this morning from AZ Plumbing and fixed the hot water heater. It is working, knock on wood. We have hot water and I plan to take a nice long shower in a few minutes and wash some clothes. Mr. Rodriquez is very pleasant and seems to know what he is doing. I would recommend him to anyone and hope he will coninue under contract to you.
This has been aggravating, for sure, but there is nothing that could have been helped and again, I have to be grateful that clean water is available to me 24/7 by the flick of a wrist...more than many in this world can say.
Thank you, AHS...until the next time and I hope that is a long way off.
This has been aggravating, for sure, but there is nothing that could have been helped and again, I have to be grateful that clean water is available to me 24/7 by the flick of a wrist...more than many in this world can say.
Thank you, AHS...until the next time and I hope that is a long way off.
Wednesday, August 08, 2012
Hello again American Home Shield
Dear American Home Shield,
It's me again. Still no hot water. No part arrived but I did get a phone call telling me the part should arrive tomorrow, Thursday. Rather strange as it was supposed to be sent by overnight Express at AZ Plumbing's expense on Monday which should have put it here by today, Wednesday, at the latest. I received another call telling me the technician will be here Friday to install it so at least two more cold showers are ahead. I have such a hard time understanding the caller I have to get her to repeat several times. Geez...where is she? Pakistan?
Now the good news...for some reason I received a check for $22 from American Home Shield. There was no note saying why I was getting it but I will indeed cash it. I just wish it were big enough for us to check into the new Hilton down the street and enjoy a hot shower, a loooonnnnggg hot shower.
We have had no hot water since a week ago last Sunday. I would like to say that I am getting used to it but spoiled woman that I am, I'm not. I'm trying to think positively and be really grateful that I have clean water knowing that there are many in the world who do not. We do have a tub but I'm too old and stiff to get in and out of it so any suggestions of heating water on the stove and carrying it across the house are not valid. Besides I don't think I can carry a big tub of anything all the way across the house but maybe two of us could.
I can't point a finger at anybody in this. It is what it is...what's broke is broke. But word to the wise: Do not buy a Whirlpool hot water heater. Replaceable parts are unavailable at Home Depot, Lowe's and local plumbing supply houses. Parts must be ordered directly from Whirlpool which frankly sucks for everyone but Whirlpool.
It's me again. Still no hot water. No part arrived but I did get a phone call telling me the part should arrive tomorrow, Thursday. Rather strange as it was supposed to be sent by overnight Express at AZ Plumbing's expense on Monday which should have put it here by today, Wednesday, at the latest. I received another call telling me the technician will be here Friday to install it so at least two more cold showers are ahead. I have such a hard time understanding the caller I have to get her to repeat several times. Geez...where is she? Pakistan?
Now the good news...for some reason I received a check for $22 from American Home Shield. There was no note saying why I was getting it but I will indeed cash it. I just wish it were big enough for us to check into the new Hilton down the street and enjoy a hot shower, a loooonnnnggg hot shower.
We have had no hot water since a week ago last Sunday. I would like to say that I am getting used to it but spoiled woman that I am, I'm not. I'm trying to think positively and be really grateful that I have clean water knowing that there are many in the world who do not. We do have a tub but I'm too old and stiff to get in and out of it so any suggestions of heating water on the stove and carrying it across the house are not valid. Besides I don't think I can carry a big tub of anything all the way across the house but maybe two of us could.
I can't point a finger at anybody in this. It is what it is...what's broke is broke. But word to the wise: Do not buy a Whirlpool hot water heater. Replaceable parts are unavailable at Home Depot, Lowe's and local plumbing supply houses. Parts must be ordered directly from Whirlpool which frankly sucks for everyone but Whirlpool.
Sunday, August 05, 2012
Geez louise...still no hot water
Dear American Home Shield, I know you consider me a liability at this point and I am beginning to wonder about you. But I live in a house that is nearly 50 years old and shit just seems to happen through no fault of mine or yours BUT I still have no hot water.
The plumber was here Saturday, bless his heart, really, really nice guy named Adrian Ramirez who is truly doing the best he can with what he has. It seems that he can't install the new part to the hot water heater because there is another problem concerning the baffle. Evidently when it was installed a few years ago (by a plumber you, AHS, sent) it is minus some clips that hold up the baffle. I recall the installation being done by an old guy and a young helper. We were relieved he had a helper as he struggled to get up the ladder in the attic and we were afraid he might have a heart attack up there. Evidently the clips were knocked off in the installation and I guess he didn't notice or figured it would last a while without them. Well, it did until now. So now we need another part in order to replace the previously ordered part.
Adrian called the "emergency parts" department of Whirlpool, the maker of the hot water heater. They have the parts but can't ship until Monday. So even overnight the parts won't arrive until Tuesday or Wednesday. Once again I am to call when the part arrives and pray that Adrian can come back ASAP to make the repairs. I'm trying to think positively but past experience makes me wonder "Oh geez, what if they aren't the right parts?" Here we go again?
I am learning to go with the flow...no pun intended or maybe it is. I have figured out that if I wait to shower between 3 and 5, the water pipes in the attic are so warm that if I jump into the shower quickly, the water is hot for a few seconds before it turns lukewarm. So I shampoo quickly, soap fast and then brace for the cool. Hey, it works for me thought the rest of the family aren't happy campers. Granddaughter tried heating several kettles of hot water for her bath but by the time each kettle had heated, the water in the tub had cooled. Hubby and daughter are just gritting their teeth and going for it. We're using paper plates which ecologically bothers us but we do heat water for pots and pans, etc.
I am so happy to report that the light on my ceiling fan has been repaired, is better than before and the electrician was so polite and courteous. That problem is fixed, thank you very much, American Home Shield.
Now the question: back to the hot water heater....is this what is happening to everyone who has to deal with repairs? Or is it just the tradesmen under contract to American Home Shield? Up until this year we have never had a problem. We've used AHS for years, used it for rental property. Does this happen to everyone who lives in a house that is over 20 years old? So frustrating.
The plumber was here Saturday, bless his heart, really, really nice guy named Adrian Ramirez who is truly doing the best he can with what he has. It seems that he can't install the new part to the hot water heater because there is another problem concerning the baffle. Evidently when it was installed a few years ago (by a plumber you, AHS, sent) it is minus some clips that hold up the baffle. I recall the installation being done by an old guy and a young helper. We were relieved he had a helper as he struggled to get up the ladder in the attic and we were afraid he might have a heart attack up there. Evidently the clips were knocked off in the installation and I guess he didn't notice or figured it would last a while without them. Well, it did until now. So now we need another part in order to replace the previously ordered part.
Adrian called the "emergency parts" department of Whirlpool, the maker of the hot water heater. They have the parts but can't ship until Monday. So even overnight the parts won't arrive until Tuesday or Wednesday. Once again I am to call when the part arrives and pray that Adrian can come back ASAP to make the repairs. I'm trying to think positively but past experience makes me wonder "Oh geez, what if they aren't the right parts?" Here we go again?
I am learning to go with the flow...no pun intended or maybe it is. I have figured out that if I wait to shower between 3 and 5, the water pipes in the attic are so warm that if I jump into the shower quickly, the water is hot for a few seconds before it turns lukewarm. So I shampoo quickly, soap fast and then brace for the cool. Hey, it works for me thought the rest of the family aren't happy campers. Granddaughter tried heating several kettles of hot water for her bath but by the time each kettle had heated, the water in the tub had cooled. Hubby and daughter are just gritting their teeth and going for it. We're using paper plates which ecologically bothers us but we do heat water for pots and pans, etc.
I am so happy to report that the light on my ceiling fan has been repaired, is better than before and the electrician was so polite and courteous. That problem is fixed, thank you very much, American Home Shield.
Now the question: back to the hot water heater....is this what is happening to everyone who has to deal with repairs? Or is it just the tradesmen under contract to American Home Shield? Up until this year we have never had a problem. We've used AHS for years, used it for rental property. Does this happen to everyone who lives in a house that is over 20 years old? So frustrating.
Wednesday, August 01, 2012
Here we go again...
Hello American Home Shield...are you listening, Ms. Cameron? Now it is our hot water heater. A Whirlpool which you installed a few years ago when the old one went out during Christmas dinner and leaked through the ceiling onto the bar filled with pies.
Sunday night we had no hot water. Early Monday morning I called AHS to report the problem. I asked for AZ Plumbing who had just done a great job unstopping the tub. I was to hear from them within a few hours.
Tuesday, no call as yet. I call them and was told a technician would be out Wednesday between 8 and 1. Cold showers it has been for our family of four...no dishwasher, etc.
I had to leave at noon and left my 40+ year old intelligent daughter in charge. The technician arrives at 12:45, goes into the attic and comes back to say we need a thermal coupler which will have to be ordered. It could take up to 2 weeks but we can order overnight shipping at our expense. No estimate on how much that would be. I return at 3 and call AZ Plumbing and explained I needed to know how much the overnight would be. Two weeks with no hot water is not a pretty picture, spoiled rotten woman that I am. I'm thinking it could be cheaper and easier to go to Home Depot and get one but it turns out it also needs a converter for the way it threads which has to com from Whirlpool. Not available anywhere else. I was told to call Simon, the Supervisor. I call Simon who asks me to hold while he checks something. He comes back and says I need to call the number I just called. I told him I just called it and they told me to call him. He says "Hold on while I check." He comes back and says a dispatcher will call shortly.
The dispather calls 30 minutes later and says the overnight will be $30 but it is too late to overnight it today and it will go out tomorrow. Reluctantly I give my credit card. Why do I have to pay for the shipping when it is something the plumbing company should carry? I am to call when the part arrives at my house. Is this sounding familiar? Holy moly!
I insist that the dispatcher arrange that when I call with the newly arrived part, a technician be available to put the part in on Friday. She sounds very skeptical but agrees to make a note.
I DO NOT want to go through the weekend with no hot water!
Tomorrow the electrician is to return with the light kit to fix the ceiling fan. Wanna take bets on how that is going to go?
Sunday night we had no hot water. Early Monday morning I called AHS to report the problem. I asked for AZ Plumbing who had just done a great job unstopping the tub. I was to hear from them within a few hours.
Tuesday, no call as yet. I call them and was told a technician would be out Wednesday between 8 and 1. Cold showers it has been for our family of four...no dishwasher, etc.
I had to leave at noon and left my 40+ year old intelligent daughter in charge. The technician arrives at 12:45, goes into the attic and comes back to say we need a thermal coupler which will have to be ordered. It could take up to 2 weeks but we can order overnight shipping at our expense. No estimate on how much that would be. I return at 3 and call AZ Plumbing and explained I needed to know how much the overnight would be. Two weeks with no hot water is not a pretty picture, spoiled rotten woman that I am. I'm thinking it could be cheaper and easier to go to Home Depot and get one but it turns out it also needs a converter for the way it threads which has to com from Whirlpool. Not available anywhere else. I was told to call Simon, the Supervisor. I call Simon who asks me to hold while he checks something. He comes back and says I need to call the number I just called. I told him I just called it and they told me to call him. He says "Hold on while I check." He comes back and says a dispatcher will call shortly.
The dispather calls 30 minutes later and says the overnight will be $30 but it is too late to overnight it today and it will go out tomorrow. Reluctantly I give my credit card. Why do I have to pay for the shipping when it is something the plumbing company should carry? I am to call when the part arrives at my house. Is this sounding familiar? Holy moly!
I insist that the dispatcher arrange that when I call with the newly arrived part, a technician be available to put the part in on Friday. She sounds very skeptical but agrees to make a note.
I DO NOT want to go through the weekend with no hot water!
Tomorrow the electrician is to return with the light kit to fix the ceiling fan. Wanna take bets on how that is going to go?
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This entry will surely bore many of you but I am blogging all this to document the progress of the disease for both of us in hopes that someday I may put it all together to help someone else who is struggling as a patient or a caregiver.